Charlie’s Chronicles
Charlie’s mom, Jennifer, here. Sharing our family’s life with Duchenne muscular dystrophy in our midst. We make it sleep outside.
The Boston Globe: Where There’s a Will, There’s Fenway
Our 3-year-old son has a rare genetic disease. I search for an angle into this sad story where he might defeat the beast. The promise of victory is an uphill climb, to be sure — but possible. Within reach. As a lifelong, card-carrying member of Red Sox Nation, it’s all I need to hear.